Community voices
“I’m a person who doesn’t really ask for help, so it’s heartbreaking when you do and you can’t get the support you need because the chosen people don’t care to understand. For me, that’s the hardest part of living with scleroderma. ”
Tya, living with Raynaud’s disease
“My time from pain to diagnosis took too long. We need the healthcare system to be more responsive and attentive to patients – and patients should be involved in making this happen.”
Tucker, living with Arthritis
“For other kids with arthritis who play sports, I want them to continue. I don’t want them to give up on the sport they love, even if they have arthritis.”
Josh, living with Arthritis